Get Connected is a National patient-powered registry that allows those with sickle cell disease to enter their medical history online, in the secure Get Connected database. By doing so, the patient has access to their information, no matter where they are in the country. This lets them, or a hospital that is treating them, have up-to-date medical data. Other benefits of this registry are newsletters, community forums, and other sickle cell disease specific information.
The "GetConnected" registry is FREE and CONFIDENTIAL. Once you register you will receive an approval email link that allows you to go back into the registry and complete your profile. Please select the Sickle Cell Disease Foundation of California (SCDFC) to make sure you are connected to receive information, updates and services from us.
The SCDFC will give priority for resources and programs to those who have completed profiles in the "GetConnected" registry. Please feel free to contact us for more information or to help you get registered.
Get Connected with our Community Health Workers
Community health workers can bridge the gap between the SCD community and quality medical, education, and counseling support for unmet needs and comprehensive life quality care.